Financial, Insurance & Co-Pay Assistance

Even with the best insurance, living with ET, PV, or MF is expensive and takes a bite out of your budget. Here are resources that may offer some relief. If you know of others, please let us know.

1st Things First:

  1. Keep all your medical and prescription medication receipts in one place. You will refer to them later.
  2. Keep all your medical billing statements in one place (near the receipts).
  3. Keep track of what procedure/test was done at each appointment (mark in your calendar)
  4. Remember that Billing and Coding errors occur frequently (usually not in the patient’s favor).  If you practice #1 – 3, you can catch the errors and get the corrections made.

Financial & Insurance

Patient Advocate Foundation:
Phone:  1-800-532-5274

Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit organization which provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis also assisted by doctors and healthcare attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

Cancer Care:

Leukemia & Lymphoma Society (LLS):

MPN Advocacy:


Give Forward:   (help in creating a fundraiser, no information on costs).

You Caring:

BMTInfoNetwork:  offers fundraising ideas

Loans:  (consumer lender with a cancer living benefit program)

US Federal Benefits   1-800-333-4636

For US citizens:  This official government website helps citizens navigate federal and state resources for which they may be eligible. Complete the on-line questionnaire and programs matching your situation will be identified.

Medicare Rights Center    1-800-333-4114

The largest independent source of health care information and assistance in the United States for people with Medicare. Services include enrollment projects, telephone hotline services, education department, public policy efforts, and media communications.

U.S. Social Security Administration    1-800-772-1213

If a person is likely to be unable to work for 12 months while undergoing treatment, applying for Social Security Disability may be an option.

Help with co-pays and meds

Some co-pay assistance programs are disease-based. That means that medications are covered for individuals diagnosed with specific diseases.  Others are medication based. That means that the assistance is available to a patient who has a prescription for the medication it covers. They are funded differently, and the diseases and medications they cover may change as funding and contracts change.

for Jakafi:

Patient Access Network:  Phone:  1-866-316-7263

PAN Foundation has co-pay assistance program for Myeloproliferative Neoplasms and many other diseases.

Good Days from CDF (formerly known as Chronic Disease Fund, Inc):     Phone:  1-972-608-7141

Good Days is a co-pay assistance organization and Myeloproliferative Neoplasms are covered.

HealthWell Foundation:

Phone:  1-800-675-8416

The HealthWell Foundation provides financial assistance to eligible individuals to cover coinsurance, copayments, health care premiums and deductibles for certain medications and therapies. If you’ve been prescribed a medication and your insurance company covers it, but you still cannot afford the coinsurance or copayment required, they may be able to assist you by paying for part of your costs associated with the medication. Also, if you are eligible for health insurance, but cannot afford the insurance premium, they may be able to assist with your insurance premium.

NeedyMeds:   Phone:  1-800-503-6897

NeedyMeds, a 501(c)(3) non-profit information resource devoted to helping people in need of assistance of affording their medications and costs to health care. In addition to co-pay assistance (MPN are covered diseases), NeedyMeds has discount programs for several diagnostic procedures, advocacy services, and a crowd-source fundraising platform for patients.

Partnership for Prescription Assistance:

Phone:  1-888-477-2669

Patient Advocate Foundation Co-Pay Relief Program:

Phone:  1-866-512-3861

CancerCare Co-Payment Assistance Foundation:

Phone:  1-866-552-6729

Rx Outreach:   Phone:  1-800-769-3880

Non-profit organization that provides co-pay assistance for a wide range of prescription medications.  Search by medication to see what they cover.

Patient Services, Inc:                                                        Phone:  1-800-366-7741

PSI is a national non-profit organization that supports people with expensive chronic illnesses and conditions through locating solutions with health insurance and assisting with premiums and prescription copayments. MPNs are not presently among the diseases they assist with, but other blood diseases are.


Help Around the House

Cleaning for a Reason:

Travel Assistance

Angel Flight:


Housing info for treatment at MD Anderson:

 Joe’s House:


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: