Employment, Legal, Advocacy

Many people living with Essential Thrombocythemia (ET), Polycythemia Vera (PV), and Myelofibrosis (MF) work full time.  For others, the symptom burden makes it impossible to maintain employment. Symptoms change over time. It is important to know your rights regarding benefits, insurance, and disability.

Should I tell people at work?  If so, what should I say?  If not, what happens if I need some accommodations to do my job?  How do I keep insurance if I lose my job?      Here are some helpful resources:

Cancer and Careers     www.cancerandcareers.org

Cancer and Careers is dedicated to empowering and educating people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events. Through a comprehensive website, free publications, career coaching, and a series of support groups and educational seminars for employees with cancer and their healthcare providers and coworkers, Cancer and Careers strives to eliminate fear and uncertainty for working people with cancer.

Cancer Legal Resource Center      800-THE-CLRC


The Cancer Legal Resource Center (CLRC) is a national, joint program of the Disability Rights Legal Center and Loyola Law School Los Angeles. The CLRC provides free information and resources on cancer-related legal issues to cancer survivors, caregivers, health care professionals, employers, and others coping with cancer.

The CLRC has a national, toll-free Telephone Assistance Line (866-THE-CLRC) where callers can receive free and confidential information about relevant laws and resources for their particular situation. Members of the CLRC’s Professional Panel of attorneys, insurance agents, and accountants can provide additional assistance.

Patient Advocate Foundation     www.patientadvocate.org

1.800.532.5274  or  757.873.6668

This serves as an active liaison between the patient and his or her insurer, employer, or creditors to resolve insurance, job discrimination, and/or debt crisis matters relative to their diagnosis.

Needy Meds     www.needymeds.org/medical-mediation

Needy Meds offers a fee-based medical bill mediation service for people with more than $1,000 in unpaid medical expenses.


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