About

While Essential Thrombocythemia (ET), Polycythemia Vera (PV or P Vera), and Myelofibrosis (MF) are rare chronic blood cancers, we are fortunate to have a vibrant ‘virtual’ community on-line that reduces the feeling of isolation.

Think of this site as a “yellow pages” directory of organizations and resources that provide current information in their areas of focus.  Let your cursor do the clicking…

The focus is on MPN-specific resources. Some of the resource links are helpful to people with other chronic illnesses or cancers; they could be helpful to others you know.

This MPN Community Support site is created and curated by people living with Myeloproliferative Neoplasms (MPN) FOR people living with MPN.

Special thanks to these fine people for sharing resources for the good of the whole:  Marina Peed, Zhenya Senyak, Diane Blackstock, Mary Cotter, Jane Frantz, Ellen Jacquart, Michael Goldstein, Beatrice Larroque, Julie Libon, Deborah Miller, Charles Neilson, Cheryl Petruk, Marty Prager, Bob Rosen, Jeremy Smith, Kathy van Meter, and others. 

you can reach us at:  mpnbuddies@gmail.com

 

 

 

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2 comments on “About
  1. Jean A. Austin-Long says:

    I HAVE BEEN CHARGED $57.83 ON MY BANK ACCOUNT AND NEVER HAVE DONE BUSINESS WITH OR SENT MONEY TO OR EVEN HEARD OF THIS DISEASE BEFORE LOOKING IT UP ON GOOGLE. PLEASE STOP CHARGING MY ACCOUNT. I HAVE HAD TO CHANGE THE ACCOUNT AND WILL HAVE OTHER PROBLEMS DUE TO YOUR ERROR.

    • Zhen says:

      Hello, Jean… It sounds awful but I have no idea what you’re talking about. We charge NOTHING, sell NOTHING, collect NOTHING from readers. Who charged your bank account and for what? MPN Community Support is a voluntary patient organization and all we offer is FREE support via this website. Please let me know what’s going on and we’ll see if we can help you sort things out.

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